Privacy policy


We are committed to protecting your privacy online. We protect any personal information you give us while you use our website.


This website:
  • stores temporary cookies that are removed when you close the browser window, such as a user session identifier;
  • stores cookies (yes/no) for remembering what things have been turned off/closed;
  • stores cookies for remembering font size;
  • Stores cookies to enable the "Remember me" setting for your username
  • stores cookies for improving the usability of engaging aspects such as the chatroom or forum (in particular, auto-saving of partially-typed posts);
  • stores other kinds of cookie that are mentioned before they are set;
  • logs basic information pertaining to your computer including your IP address, web browser name, and operating system;
  • stores other information that you explicitly enter, such as your account information, or forum posts;
  • if you are logged in, your member profile will update the publicly displayed time that you last visited (which will also be stored in a cookie), and you will show as online (unless you login as invisible).
If you wish to see what exact cookies are saved, or delete cookies, you may do so using standard tools built into your web browser.

Bulk Email

We may occasionally send bulk e-mails about FuchsFriends UK, or matters relating to Fuchs to our members. We will not send bulk e-mails or allow others to send bulk e-mails, which we believe would be considered spam.

The General Data Protection Regulations (GDPR)

Fuchsfriends UK supports the principles set out in the GDPR as this formalizes the rights of people who give personal details to organisations such as ours.

The GDPR gives you the right to be made aware of the data that is being held about you in addition to the right to correct any erroneous information in that data.

You also have the right to place restrictions on how that data is used.

Our Privacy Policy

We will only retain the minimum data about you in order that Fuchsfriends UK can function on a day to day basis. The data we retain will be used for us to commnicate with you and to put you in contact with other members if you instruct us to do so. We also use your information for administrative purposes, to let you know about changes we make to the services we provide and to this website.

We will never pass on any of your data to third parties without first obtaining your instructions to do so. We will never accept any payment from third parties for passing your data to them if you instruct us to do so. We will limit the data we collect about you to :
  • Your name
  • Address (if provided by you)
  • Your age
  • Telephone number (if provided by you)
  • Whether you have Fuchs Corneal Dystrophy or are joining on behalf of a friend or relative
  • Your reason for joining Fuchsfriends UK
  • The year that you were diagnosed with Fuchs Corneal Dystrophy
  • How you heard about Fuchsfriends UK
  • Your email address
* The above data can be edited by members themselves in their Profile.

We also monitor IP addresses. This is to protect the site against misuse and to automatically block certain spam and Hacking attacks.

We reserve the right to share your personal information if we are legally obliged to and to enable us to apply our terms and conditions.

The GDPR  gives you the right to request us to disclose what specific data we hold about you. You may wish to ask us to disclose the information we hold in order to confirm that this is correct. The regulations also give you the right to request us to delete all or part of the data we hold about you. Your members profile provides access to all this information where it can be checked, and corrected as necessary, including the option to delete your profile. Should you need any further assistance in all or part of the information we hold, or should you merely wish to check the information, please contact us by email at We will respond within 21 days of receiving your request. 

Unfortunately, no data transmission over the Internet is 100 per cent secure. As a result, while we try to protect your personal information, we cannot guarantee the security of any information you transmit to us and you do so at your own risk.

Private Topics and Posts

The staff reserve the right to read any Private Topics and posts placed on this website. Any form of conversation made through this website should be considered viewable by staff. All private-posts and posts, whether 'deleted' or not, are stored on the server and may be reviewed if we feel we have cause for an investigation. If you do want to keep something private, do not use our services for transmitting it. Situations involving investigations can be anything at our discretion, for example, to investigate specific incidents of our services being used for racism or harassment.
Privacy and comments on our Forum

The posting of personal information in a forum means your information is publicly accessible. Such information can be viewed online and collected by third parties. We are not responsible for the use of information by such third parties. We strongly recommend you avoid sharing any personal information that can be used to identify you (such as name, age, address, name of employer).

Changes to this policy

We may change our policy from time to time, so please check our Privacy Policy from time to time..

Privacy settings

Logged in members may choose which fields display publicly.